The Umbrella Network

For Beginners

 

Every one of the families connected with The Umbrella Network has had to begin their journey somewhere. It  may have been before their baby was even born , when they were a small child ..or even a teen. But they ALL had those very first thoughts of 

‘what do we do now ? ‘

Here are some very basic TIPS from those families to help  get you started .We know this is very overwhelming time in your families life so consider this section a bit like ‘ Special Needs for Dummies’  - if it was politically appropriate to even write a book like that! So following that comment – here is our first tip . 

1. Never lose your sense of humour – you will need it to keep your sanity!  :)

2. Breath … take a step back and have a few days without a doctors or therapy appointment. At the beginning it is hard to see through all the doctor ‘talk’ and all those assesments. If you have a very small bub:  make sure that you don’t over do the therapy appointments! Let them be babies and simply love them to bits. YES therapy is  important but it is more important that you don’t let them rule your days. You will NOT be taken off a list if you can’t make a session.

3. You have the complete right to say to your doctor / therapist / health professional ‘ I don’t understand what you are saying’ and not feel like an idiot. ( in fact you can say it as many times as you like until they explain it in a way that you do understand. You have the right to change doctors until you find one you like! We have a number of great ones we can recommend – just ask.

4. Ask your doctor if they know of any other family in a similar situation – and can he/she organise a contact?

5. CARERS ALLOWANCE = A bit of paperwork and a letter from your doctor can mean some financial help for you. Yes you are a ‘Carer’ which may seem strange but you are entitled to it. click here for info

6. ECDP playgroups : These are Early Childhood Development Programs at various State Primary schools . eg Vincent, Bohle , Heatley. Ask your doctor to refer you . We HIGHLY recommend these playgroups – Most of us seasoned Umbrella Mums met at these groups and they are wonderful. Fantastic , skilled staff and mums and dads like you go to them. click here for details

7. Inclusion Support Agency : This is run by the Townsville City Council and they can help get you assistance in your daycare centre. Visit details here  

IMPORTANT NOTE

You don’t need to have all the answers at the start!

You DO need to pace yourself and conserve your energy so you can be the best mum / dad / gparent / carer ..for your child.

You can do this… even if some days you think you can’t. It will be tough going but parenthood is for everyone. If you don’t think of yourself as any different – than people wont treat you differently. The same goes with your child!

Remember – WE ALL HAVE A CHOICE.

( and refer back to point 1..at all times )